We'll we have gained 1 pound in a month, which is fabulous concidering... I take her to feeding therapy once a week in Enterprise and we are progressing and the surgeon is happy.. She is such a strong willed little thing and that's what has gotten us this far. Feeding therapy is so HARD and takes alot of patience... In her defense she does take feeds all night so when she wakes up every morning she is gagging at just the smell of my coffee, it's really sad. She can go all day w/out eating and she'll smell dinner cooking and she begins gagging after she haden't ate a thing all day.. She is a 2 year old too so I know they are pickey eaters..I just wish there was a quick fix..The surgeon is happy with our progress so we are still going to work really hard to get her wait up a little bit more. We are not wanting to have surgery so right now we are not on bolus feeds we are just on the pump at night..At one point they were concidering putting a 24 hour backpack on her and that would just really set us back..Our feeding therapist is working so well with her and we are so thankful for her.. She has come so far and we know that god is working through her.. We have new AFO braces that seem to give her alot of support in her ankles. She is walking and running so much better..
Parker and Paisley have both got the crud and Parker has strep throat.. Another day devoted to a dr's office.. We are just so thankful for each therapist and dr. that god has guided us to. Parker is such a great big brother she will do things for him so much quicker than she'll do for me...
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